I've already done a post here looking back over the years and reflecting on how far I've come, but its just hugely frustrating that the final roadblock, the last thing for me to get over and get back to some sort of normalcy is proving so difficult to get around. I've actually been out 3 times in the past week; not going anywhere in particular, but just trying to make some sort of symbolic stand against an imaginary construct of my limitations. Suffice to say, it's not gone so well.
I've been battling with M.E. for a full decade now, and I would say I've got a reasonable handle on my symptoms and how to manage them, so its all the more astounding really that I managed to misjudge this one so badly. Going out takes energy. Just because you insist that you're “trying harder” or putting up some sort of fight about it does not in any way negate the amount of energy that going out expends, leading to a rather major flaw in the plan of “I'll just do it lots and lots until it gets easier”.
My other brother returns from his travels in continental Europe tonight. He's my younger brother by age, but he passed by me socially many years ago. It doesn't help with the mid-life crisis when you're still pining over things and experiences that someone you're meant to be more advanced than has burned through them all and got sick of them! Next he'll be finished Uni and off into the world of employment, while my nights are filled with dreams of the school bus and sleepovers.
Still, I've got the chance to dazzle him with my culinary prowess that I've been working on while he's been away. Buttered pasta with grated cheese, and yes – I did grate that cheese myself.
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